Jenny recalled feeling overwhelmed in the days after Scarlett’s accident. “It was tough in the beginning, especially when we learned we would be coming back to the hospital throughout Scarlett’s childhood for follow-up care.”
Now, Jenny explained, Scarlett holds the hospital in such a positive light that she always wants to know when she can go back for a return visit. “She asks us when she can see her doctors and nurses. It is a completely different type of relationship which makes the idea of future surgeries much more palatable,” Jenny shared.
Child life specialists Hilary and Brooke were particularly important to Scarlett, especially during her inpatient stay. Through musical instruments and play therapy, they helped calm her. Jenny found a doll in a wheelchair with a cast for her foot, which also helped Scarlett process what she was experiencing.
During that initial stay, Scarlett had one dressing change a day. “Every day Hilary and Brooke made a point to come to the dressing change early with big smiles to distract Scarlett from the procedure, which was very difficult for her. That was so helpful, even for me, because every time Scarlett started crying, I would too,” Jenny said.
Nurses Diana and Alycia also made a lasting impact on Scarlett and her family. “Diana was reassuring and consoling, and we felt like she was really there for us,” said Jenny.
Nurse Alycia spent a lot of time with the family, explaining every aspect of Scarlett’s upcoming surgeries. “In the beginning, there was a chance Scarlett might lose some toes or even a foot. Alycia spent so much time with us explaining every possible outcome,” Jenny recalled.
Now 4, Scarlett loves to dance, enjoys gymnastics and is attending preschool. Jenny, Nathan, Scarlett and big brother Daniel recently attended the Shriners Children’s Boston Haunted Walk. “We feel like we are part of the Shriners community and wanted to give back. And of course, who doesn’t want to celebrate Halloween? We all dressed up and came with our family and friends. And it was really special to see some of our care team outside of the hospital,” Jenny said.
Scarlett’s family wanted to share their experience in hopes that it might help other families. “I remember when I was in the hospital with Scarlett, I would go on the Shriners Children’s Boston website and read the patient testimonials, because they made me feel like my family would get through this. Everyone’s story is so different. Some of the stories were about teenagers reflecting on a childhood injury. Some were even adults looking back, and that was so helpful because I felt like everything would be alright,” said Jenny.