Scoliosis Bracing: Tips from a Patient Who’s Been There

Patients beginning a scoliosis bracing journey often have questions and even a few worries. Will the brace be comfortable? How will I manage it at school? What if I feel frustrated or overwhelmed?

Shriners Children’s New England Patient Ambassador Jillian, 17, understands exactly what that experience feels like. She was diagnosed with scoliosis at 12 years old and completed bracing treatment. Here, she shares tips and words of encouragement to help others adjust, comply and be confident on their journey.

What’s your #1 tip for someone just starting to wear a brace?

Ease yourself into it, and if you’re feeling uncomfortable all the time, tell someone. It’s better to have the fit checked rather than be uncomfortable and possibly not wear the brace.

What helped you wear your brace for the recommended number of hours?

I had an app that tracked the hours for me and “banked” extra hours I wore the brace. I also built my schedule around sports. I wore my brace all the time except for gym class and soccer. When I got home, I’d shower and put it right back on.

What helped you stay comfortable wearing the brace?

I wore clean, dry undershirts under my brace. Stretchy, seamless tank tops felt best to me. The ones that Shriners Children’s gave me were the best.

What made sleeping in your brace easier?

I started by sleeping on a firmer surface, then eased myself back to a softer one. The firmer surface helped keep the brace from moving around too much when I did.

What helped you feel comfortable wearing your brace at school?

I always had an extra dry shirt/tank top with me in case I needed to change. I also kept a small washcloth in case I needed to freshen up during the day. Try to stay confident – even if it feels tough at first. Being open with friends and classmates helped. You never know who else might be going through something similar.

What helped you feel confident while wearing your brace?

I decorated mine to reflect my interests and personality and didn’t hide it. Wearing clothes that made me feel comfortable also helped me stay confident.

What’s one thing you learned after bracing treatment?

I learned that I’m stronger than I thought. I’m proud of myself for adapting and continuing to do the things I enjoy.

Final words of encouragement

Bracing isn’t always easy, but it’s an important step toward a healthier future. Take it one day at a time, lean on your support system, and don’t be afraid to speak up if something doesn’t feel right.

As Jillian shows, with time, patience and the right support, bracing becomes a part of your routine and your strength.

You’re not alone on this journey.