Talia first came to Shriners Children’s Boston when she was 4 for a consultation at the Cleft and Craniofacial Center, a partnership with Mass General Brigham for Children.
Now 16, Talia and her family are grateful for the personalized, compassionate care she has received throughout her childhood. Talia credits her journey as a patient with helping to shape her into the person she is today and inspiring her goals for the future.
Talia was born with a bilateral cleft lip and cleft palate. She underwent surgery for both conditions near her home in Canada when she was a baby. Although the initial procedures were successful, Talia’s family wanted to learn about additional treatment options as she grew older. During their consultation with the Cleft and Craniofacial Center, they learned that Talia could benefit from newer techniques available in cleft care.
Over the past 12 years, Talia has had a series of surgeries, including a small revision to her nose and a bone graft to help her teeth develop properly. She also had fat grafting for her lip, a reconstructive procedure to improve scar appearance and overall function. Most recently, Talia returned to Boston for her second successful pharyngeal flap procedure, which was successful. Common among patients with a cleft palate, this surgery corrects air flow during speech.
Talia’s mom, Taymar, a nurse, has great respect for the entire Cleft and Craniofacial Center team. “Everyone on the team is amazing,” she said. “They’ve always held such a high standard. Everyone is open and willing to answer all my questions, even when I ask things that other parents might not think to ask.”
The co-directors of the Cleft and Craniofacial Center, Zachary Peacock, M.D. and Kavitha Ranganathan, M.D., have both been instrumental in Talia’s care. Taymar also credits the center’s nurse care manager, Sandy Barrett, RN, BSN, CCM, with being a constant source of support from Talia’s very first days as a patient. “Sandy is so thorough, and I always appreciate her perspective,” said Taymar. “Dr. Peacock’s bedside manner is incredible. He’s very transparent and lets Talia know exactly what she can expect.”