-
Condition
Nager Syndrome
Nager Syndrome is a rare condition that affects the development of a child’s face, hands, and arms. Children are born with underdeveloped cheek bones, a small lower jaw, and often have a cleft palate.
-
Patient Story
You’re Sticking Out for a Reason
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2024/05/Colton-Head-in-the-GameColton refuses to let his leg difference limit his athletic potential. With the help of his team at Shriners Children's St. Louis, he has the confidence and the prosthetics he needs to be competitive.
-
Patient Story
James’ Journey of Recovery with Shriners Children’s Ohio
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2024/11/James-Journey-of-Recovery-with-Shriners-Childrens-OhioJames is the first to extend a handshake when meeting someone new, and eager to embrace someone he loves. When asked what makes him grateful, he replies with an enthusiastic shout, “Everything!”
-
Patient Story
From Desperation to Determination
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2024/12/Natalies-Bilateral-Proximal-Femoral-Focal-Deficiency-StoryBorn prematurely at just 31 weeks, Natalie’s arrival was a whirlwind for her parents.
-
Patient Story
Celebrating Cleft and Craniofacial Awareness Month: Remi’s Story
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2025/07/Remi-Cleft-Lip-and-Palate-CareA compassionate, team-based approach helped Remi's family thrive.
-
Patient Story
Shriners Children's Care Inspires Former Patient to Follow Path to Medicine
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2022/08/Shriners-Childrens-Care-Inspires-Former-PatientThirteen-year-old Elliana underwent spine surgery at Shriners Children's St. Louis. What she experienced during that time in her life sparked an interest to study medicine.
-
Patient Story
Stronger Than SCN8A-Related Epilepsy: Sibby’s Story
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2025/09/Sibby-Epilepsy-CareSibby is a 3-year-old with SCN8A-related epilepsy. Read more to learn about her specialized care plan at Shriners Children's Philadelphia.
-
Patient Story
Going the Distance
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2023/01/JokubasLithuanian boy brought to Shriners Children's St. Louis for orthopedic care, family connects through telehealth.
-
Patient Story
Chasing a Dream
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2024/09/Chasing-a-DreamWhile walking comes naturally to most children, it was a challenge for Romina, who was diagnosed with cerebral palsy (CP) after she was born prematurely at 7 months.
-
Patient Story
Perfectly Made: Micah's Journey on His Own Terms
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2025/11/micah-prosthetics-careAfter losing both legs as a baby, Micah found specialized prosthetic care and strong support at Shriners Children’s. Now 8, he’s active, confident and thriving.
Patient Information
Providers & Research
