Navigating Difficult Decisions
From the beginning, the family knew surgery would likely be part of Solo's future. Initial discussions focused on reconstruction, but over time, the conversation shifted to amputation with prosthetic reconstruction.
Like many families facing major medical decisions, they heard advice from all directions. "There are a lot of opinions that fly around," Curt said. "Everyone wants to share their thoughts about what is best for your child."
Throughout the process, Curt said the Shriners Children's team never pressured them and helped the family evaluate all the information and make informed decisions. "What we really appreciated about Shriners was they welcomed that, and they wanted to hear what we were hearing, and they were able to walk us through, 'Hey, why don't you think about this in regard to what you just said or what you just heard?'"
Ultimately, that support gave the family confidence. "As a parent, you never really think you're going to be making a decision like this," Curt said. "But when the situation presented itself, it was great to have a place like Shriners to help you make it in the right way."
One of the individuals who helped the family weigh all their options was Janet Walker, M.D., an orthopedic surgeon with more than 35 years of experience working with children with limb differences.
“For families like Solo’s, the decision to pursue amputations is never made lightly. It is a deeply personal choice that follows careful evaluation of the child’s anatomy, functional potential, and long-term quality of life,” said Dr. Walker. “In Solo’s case, the family demonstrated remarkable thoughtfulness and courage, focusing on the option they felt offered him the best opportunity for mobility, independence and participation in everyday activities. Our role as physicians is to provide expertise and guidance, but ultimately to support families as they make the choice they believe is best for their child and their family.”
On Feb. 8, 2022, Solo underwent bilateral through-the-knee amputations performed as a dual surgery by Shriners Children’s Lexington physicians Walker and Vincent Prusick, M.D., in collaboration with Golisano Children's at UK.
More Than New Legs
The next step, both proverbially and literally, for Solo was healing and then working with the in-house Pediatric Orthotic and Prosthetic Services (POPS) department at Shriners Children's Lexington.
“Without his prosthetic legs, everyday movement would have been much more difficult for Solomon,” said Eric Miller, manager of POPS and Solo’s prosthetic specialist at Shriners Children's Lexington. “They give him the ability to walk naturally and help him reach a height that feels right for him. Beyond the physical benefits, that can make a big difference in a child’s self-esteem, confidence and social experiences. Most importantly, they help him fully participate in the activities he loves.”
Over the years, the family has celebrated a variety of prosthetic designs including Mickey Mouse patterns, dinosaurs and, most recently, the University of Tennessee Volunteers logo.
For Solo, what this means to him is straightforward: “I love Shriners because they give me new legs.”
With prosthetic legs, Solo began doing things that once seemed out of reach. "All of a sudden, he is now able to run with his sisters down the driveway," Curt said. "He's able to participate when he normally wouldn't and his confidence was building."
For the family, each milestone feels remarkable. "It's as if Shriners gave us the ability to have a front row seat to this visual transformation of our son," Curt said.
Recently, Solo, now 7, reached another milestone. Asked what he had done for the first time that week, he proudly replied: "I can walk down the stairs without holding the railing."
"Things are shifting. He is walking a little bit faster now,” Curt said. “He's really understanding how his legs work. That makes it all worth it."
Over time, Solo has learned to embrace his prosthetics as part of who he is. "We've just learned a couple statements of things to respond with, and that has really helped build his confidence," Curt said.
When people ask about his legs, Solo often responds with humor. He likes to show them off and when asked what happened to his legs, he has a playful response: "I didn't eat my fruits and vegetables."