When Daniel was just 5 years old, he was diagnosed with acetabular cancer, a rare and aggressive disease that would shape the course of his childhood.
For years, he bravely underwent chemotherapy and treatments in his home country of Venezuela, and at age 9, received surgery that freed him from the disease. Along with the gift of remission came lifelong challenges. Daniel required a femur prosthesis and faced the ongoing effects of his early illness, including a curved spine, hip misalignment and a 16-centimeter leg length discrepancy.
Larger limb length discrepancies could have a significant impact on your child's quality of life, especially if the difference is in the legs. Many children with leg length differences have a limp and difficulty walking or running. They can also develop hip, knee and back pain as they approach adulthood.
Finding Hope at Shriners Children’s
In August 2023, Daniel “El Piojo” and his mother, Johanna, arrived at Shriners Children’s Northern California with hope and determination. Referred through Shriners International fraternity chapters in Venezuela and Panama, they traveled more than 3,800 miles in search of specialized orthopedic care to improve Daniel’s quality of life. The orthopedic program at Shriners Children’s Northern California is recognized by U.S. News & World Report in its Best Children’s Hospitals for Orthopedics rankings as one of the top programs in the nation Our clinicians treat a wide range of conditions, including spine deformities, scoliosis, cerebral palsy, hand and limb deformities, clubfoot and fractures.
What Johanna and Daniel found was a team ready to listen to their concerns and create a plan to achieve his goals. After the first visit with orthopedic surgeon Robert Randall, M.D., FACS, they knew they were in the right place.
Dr. Randall and the care team mapped out a personalized treatment plan. Daniel’s first surgery included replacing his femur prosthesis, adjusting his hip and lengthening his leg, all in one 12-hour procedure. A second surgery was planned to replace his knee, but after careful evaluation, the team chose to pursue physical therapy instead to strengthen the joint naturally. The exercises Johanna initially thought would be too difficult for Daniel became a challenge he was determined to conquer. “At Shriners Children’s, they have done things for Daniel that I was told couldn’t be done,” said Johanna. “I’m super grateful to the entire team."