Brynlee flashes a big smile while wearing her spica cast after her surgery.
Brynlee incorporates tummy time into her physical therapy for torticollis.
Brynlee wears her brace for 16 hours each day.
Brynlee learns to stand while catching up on developmental milestones delayed by her recovery.
Brynlee enjoys riding a carousel with her mom and dad.
But after Brynlee was diagnosed with torticollis and referred to Shriners Children’s Erie for further evaluation, Makayla learned that the condition is often linked to an increased risk of hip dysplasia, something she hadn’t known before.
At Shriners Children’s Erie, Brynlee saw Allison DiPlacido, DNP, who confirmed the torticollis diagnosis and explained that babies with this condition are at a higher risk for hip conditions. DiPlacido said catching the condition early is important for identifying hidden conditions like hip dysplasia and for effectively treating torticollis. “With early detection and treatment, we see excellent outcomes and strong resolution of symptoms.” Dr. DiPlacido recommended this imaging for Brynlee, and the results revealed a complete dislocation of her left hip.
Brynlee then saw Ozgur Dede, M.D., medical director at Shriners Children’s Erie, for care. He explained that torticollis and hip dysplasia are linked conditions that develop before birth due to limited space in the uterus. “It is important to carefully evaluate the hips of any infant diagnosed with congenital muscular torticollis,” he said. To catch and treat these issues early, Dr. Dede recommended a hip ultrasound at 6 weeks old. “A coordinated, multidisciplinary approach involving pediatrics, therapy services and orthopedic surgery helps us manage both conditions effectively and catch other subtle developmental concerns early on,” he added.
Although Makayla had heard of hip dysplasia, she was shocked by Brynlee's diagnosis – especially since she showed no symptoms. “I was overwhelmed with tears,” said Makayla.
The team at Shriners Children’s Erie calmed our fears, educated us and supported us every step of the way.
Within weeks, Brynlee was scheduled for surgery. Dr. Dede performed an open reduction at UPMC Children’s Hospital of Pittsburgh. Brynlee spent just one night in the hospital before returning home in a hip spica cast, which she wore for 11 weeks. While wearing the cast, her care team at Shriners Children’s Erie helped the family adjust, so life could continue as normally as possible.
As part of Brynlee’s care team, physical therapist Teresa Emerson, PT, played a key role in treating her torticollis and helping the family prepare for life after her hip surgery. Therapy focused on stretching and strengthening exercises for Brynlee’s neck, as well as supporting the development of age-appropriate gross motor skills.
Before surgery, Emerson educated Brynlee’s family on how the upcoming hip spica cast could affect her development, and offered strategies to adapt the home environment so Brynlee could continue engaging in activities in various positions.
After surgery, Emerson checked in regularly to monitor Brynlee’s progress and provide continued support. With all of Brynlee’s providers working under one roof, communication was efficient and coordinated, allowing the team to address needs in real time and easing the burden of multiple appointments for the family. “We felt completely supported,” Makayla said. “Everyone at Shriners Children’s Erie was just top tier. We always felt included in the decision-making process and like we were in the best hands.”
Now 10 months old and out of her cast, Brynlee wears a brace 16 hours a day to keep her hip immobilized in the optimal position for healing. She is growing strong and is learning to crawl. Brynlee also loves to swim and play outside, and is quickly catching up on any milestones that were delayed due to casting.
Reflecting on the journey, Makayla is deeply grateful for the early screening that set everything in motion. What began as a concern about Brynlee’s head movement led to a timely diagnosis that may have prevented long-term complications. “I’m so grateful that Shriners Children’s Erie screens for hip dysplasia in babies with torticollis,” she said. “Without that, we probably wouldn’t have known until she was a toddler. They take initiative and care beyond the obvious.”
Thanks to collaborative care team, early detection, treatment and therapy, Brynlee is now thriving. Makayla hopes other parents take comfort in knowing they’re not alone. “Follow your gut. Listen to your pediatrician. And ask questions,” she said. “Early screenings can completely change the path of your child’s health.”
