Twelve-year-old Gracie is unstoppable.
Whether she’s swimming laps, playing midfield on her soccer team, or whipping up her latest culinary creation in the kitchen, she’s chasing life with both determination and joy.
Gracie was diagnosed with spastic diplegia cerebral palsy when she was 19 months old. Her early years were filled with balance struggles, fatigue and slow walking. “She’d tire out so quickly,” her mom, Sara, said. “I’d find her curled up in bed taking naps just to reenergize so she could keep up with her twin sister.”
As a young child, Gracie had difficulty with balance and coordination, making it tough for her to run, kick a ball or even swing like other kids. She was receiving care elsewhere, but her parents were not satisfied. “Someone suggested Shriners Children’s,” Sara said, “and it was the best decision we ever made.”
This April marks Gracie’s eighth year as a patient at Shriners Children’s Texas. She’s received wrap-around care at the hospital, including physical therapy, serial castings and orthotics made by the Pediatric Orthotic and Prosthetic Services (POPS) team. Sara and Gracie speak highly of her pediatric orthopedic surgeon Cody Sanderson, M.D. “The staff at Shriners Children’s Texas truly have the child’s best interest at heart.” Sara said.
One of the biggest turning points in Gracie’s journey came at age 6, when she underwent a procedure called selective dorsal rhizotomy (SDR) to help reduce spasticity in her lower limbs. Shriners Children’s Texas staff coordinated with pediatric neurosurgeon Manish Shah, M.D., from UTHealth Houston. “He snipped the nerves that were causing the spasticity,” Sara said. The result was a dramatic improvement in her mobility and in her daily life.
After SDR surgery, Gracie worked hard to regain strength and improve mobility. At Shriners Children’s Texas, her physical therapy included riding a bike through the hospital halls, climbing in and out of a bathtub to build independence, and hopping over obstacles like makeshift parking curbs designed to mimic real-world challenges. “She’s an absolute go-getter,” said Sara. “If something’s in her way, she’ll move it or climb over it.”