When Stephanie and her husband went to their OBGYN for their 16-week ultrasound appointment, doctors were unable to find their son’s left forearm and hand. When Jackson was born, he was diagnosed with left upper extremity transverse deficiency, a congenital condition where a portion of the arm does not develop while in utero.
After a referral from his pediatrician when Jackson was just 8 months old, he and his family came to Shriners Children's Philadelphia for their first appointment with Dan Zlotolow, M.D., pediatric orthopedic surgeon, whom he now visits for yearly checkups.
Now 7, Jackson recently began asking his family if he could have a prosthetic arm to help with his daily activities and functions. After fittings and measurements earlier this year, he received his first prosthetic arm, which is imprinted with his favorite sports team, the Philadelphia Phillies. Jackson’s arm was custom-made by the staff in the Pediatric Orthotic and Prosthetic Services (POPS) department, and he will return for fittings and adjustments as he continues to grow.
In addition to appointments with Dr. Zlotolow and the POPS department staff, Jackson periodically works with the occupational therapy team to ensure fit and mastery of his prosthetic arm.
"Jackson is an independent kid! He can do everything on his own, but was ready to explore the world of prosthetics. He chose the Phillies design and was so excited to show it off and try it! Since delivery, he has progressed so much! He can already put it on and remove it without help and was able to easily incorporate it (and win!) a game of Connect 4 with me,” said Jaclyn Miley, MS, OTR/L.
“Mrs. Jackie is the sweetest girl ever,” said Jackson.
Stephanie, Jackson’s mom, is thankful for the amazing care and great support her family receives. They are also incredibly thankful to Dennis, a Shriner from Rajah Shriners in Reading, Pennsylvania, and his wife, Louann, for transporting them to and from appointments.
When Jackson is not in Philadelphia for appointments, he enjoys cheering on Philadelphia sports teams, watching WWE, fishing with his dad, swimming and playing video games.
Jackson and Dennis from Rajah Shriners. Dennis and his wife, Louann, transport Jackson and his family to their appointments.
Luis, a certified prosthetist, created Jackson's prosthetic arm and is ensuring proper fit.
Jackson and Jackie have fun during an occupational therapy session!
A prosthetic device has allowed him to feel like a regular kid, improve socialization and enhance his daily functions.
