Soins pédiatriques spécialisés en Ohio

Conférencier 1 :

Bienvenue à l’Hôpital Shriners pour enfants de l’Ohio, situé à Dayton, la ville où les rêves peuvent littéralement prendre leur envol et où l’innovation est dans son ADN. L’Hôpital Shriners pour enfants de l’Ohio est fier d’ajouter à cet héritage grâce à notre hôpital de pointe au sein d’un modèle hospitalier. Nous offrons des traitements de pointe pour les brûlures et les troubles cranio-faciaux. Les fentes labiales et palatines ainsi que les affections complexes de la peau et des plaies se produisent désormais au Dayton Children’s.

Un nouvel emplacement, mais avec le même engagement à fournir aux enfants les soins les plus extraordinaires, partout. Un atrium coloré et lumineux sur trois étages permet aux familles de savoir qu’il s’agit d’un lieu conçu pour les enfants. Leur imagination peut littéralement s’envoler dans la galerie Take Flight, en regardant le Dragon Flyer. Des affiches faciles guideront les parents vers les ascenseurs pour un court trajet jusqu’à l’Hôpital Shriners pour enfants de l’Ohio.

Les familles reconnaîtront facilement notre statue emblématique Shriner, connue sous le nom de Messager silencieux, qui représente un siècle d’engagement, d’expertise et de compassion pour améliorer la vie des enfants. Notre personnel amical à l’enregistrement accueillera rapidement les patients et les installera dans un espace convivial. Nos services de physiothérapie et d’ergothérapie favorisent la mobilité et la réadaptation par l’exercice et le jeu. Le prochain arrêt est la clinique ambulatoire où les patients auront leur premier rendez-vous ou leur suivi. Mais ces pièces représentent bien plus que quatre murs. C’est là que la collaboration rencontre les résultats. Une équipe multidisciplinaire élaborant un plan de traitement adapté aux besoins individuels de chaque patient.

Vient ensuite le poste des infirmiers et des infirmières, le cœur de notre unité de soins hospitaliers. Notre personnel infirmier soutient une équipe de chirurgiens et de médecins qualifiés. L’Hôpital Shriners pour enfants de l’Ohio est reconnu comme un centre de brûlés vérifié par la American Burn Association et le American College of Surgeons. Cette distinction récompense le plus haut niveau de soins et de recherche clinique au nom de nos patients.

Notre équipe expérimentée est également un leader en chirurgie plastique et reconstructrice pour traiter une variété de conditions congénitales et traumatiques comme les fentes labiales et palatines, les déformations des mains et des oreilles et une gamme d’affections cutanées. Nos soins s’étendent également à la famille, en offrant des services de soutien à l’intérieur et à l’extérieur de l’hôpital. Cette philosophie centrée sur la famille a été établie par nos fondateurs il y a plus de 100 ans. Cet engagement se poursuit aujourd’hui dans les amitiés forgées entre nos patients et les Shriners.

Ces services complets sont tous regroupés sous un même toit et en une seule visite. C’est un refuge pour les enfants et les familles en quête de confort. Il s’agit d’une rampe de lancement pour des avancées médicales dans la façon dont nous traitons les brûlures, les fentes labiales et palatines ainsi que les affections cutanées. C’est une invitation lancée aux enfants à rêver sans limites. L’Hôpital Shriners pour enfants de l’Ohio fournit les soins les plus extraordinaires, partout.

Jaclyn:

My name is Jaclyn, I am Bryson's mother. It all started when he was eight years old. In March of 2015, we had a fire burning in our backyard ,and he decided to pour some gasoline onto it out of our gas tank. Well, the flames met the fumes, and then blew up the gas tank, which therefore blew up all over him. Luckily, a bunch of neighbors had pulled over, stopped by, helped put him out. He then got onto a Care Flight and I sped down 75. When I walked in, there was just so, so many people around him that I couldn't even see how he was doing and what was going on. Almost instantly, they said, "We're going to Shriners."

Petra Warner, MD:

I am Petro Warner. I am a burn surgeon, and I'm also the Chief of Staff here at Shriner's Children's, Ohio. I do remember Bryson well, because he was an 87% burn. The key for a burn group is to have a multidisciplinary team approach. So it is a combination of occupational therapy, physical therapy, nutritional evaluations, child life care coordinators to manage the family issues, but also help allow for social reintegration when the children return back to home. I think what's also important is to address the psychological reaction.

Kimberly Tran:

Typically, when a patient comes in, the therapists actually see them from day one. We will evaluate their range of motion, their strength, their activities of daily living, how they're walking, and anything that we see as deficits or not functional. We play a role in that to make sure that they can become functional again.

Petra Warner, MD:

The wraparound care is also defined by the fact that we follow the children from when they're injured to when they're an adult. And, that is not something you see in other facilities. We are there to help with growth spurts that cause scar contracture bands. We're there to help with any other skin-related issues that might occur because of the burn, to help facilitate your recovery.

Kimberly Tran:

It is exceptional care, and we treat every family as our family.

Jaclyn:

Shriners Childrens in Ohio has tremendously helped my family, mainly my son. Like I said, without them he wouldn't be here at all. And they make these kids feel comfortable, and anything that they want to do, any type of person they want to be, they're right there behind them, helping them out and getting them to be the best people they can be. A lot of times I'm just truly inspired and awestruck by the strength of all these children, and it's all due to Shriners.

LaTasha:

My name is Latasha and this is Ava Lynn, and she is being treated at Shriners Ohio. We found out at our 20 week ultrasound, at the body scan of our 20 week ultrasound, that she was going to have cleft lip palate. We had no idea when she came out what she would look like, how severe it would be, but we knew that she would be in great hands at Shriners.

Scott Rapp:

What separates the Shriners Children Ohio system from the other children hospitals that I work in, it's really the multidisciplinary care and the ability to start a plan and complete it no matter what is involved.

With plastic surgery you really treat all the entire body. We really have to be experts in anatomy, because we do address all aspects of patient care. Cleft lip and palate is an entity where one in 500 children are born with. It's very common actually.

Christopher Gordon:

Cleft lip and palate is kind of it's own subspecialty in our field, where babies are born with either a missing portion of the lip and nose, and then down in the bone and the teeth, and then the palate itself is divided in half. Sometimes that goes along with a very small jaw, which can cause other problems like feeding problems, airway problems.

LaTasha:

He really took us and he said, "Stop worrying. It's going to be okay, trust me." So from that point on we just kind of trusted him. We've asked so many questions, but he was always there to answer any of the questions that we had.

Scott Rapp:

The greatest single benefit that I feel is that they're able to walk in and to look at what needs to be accomplished, to be able to never have to think about anything else except for what's at the best interest of the patient.

Christopher Gordon:

It creates a camaraderie and a team feeling that I've never really seen anywhere else. You just got a really dedicated group of people who love what they're doing.

Amanda Fields:

What we find is meeting families where they are, making sure their basic needs are taken care of, and just making sure that they're comfortable so that they know that we are treating their child just like we would treat our child.

Scott Rapp:

It's really every single person that they encounter makes them feel special. So for them to at least feel a little bit more at home, a little more safe with us, then I think that really translates to their outcome, and it's not just the technical surgical outcome. It's the overall outcome for the patients and their families.

LaTasha:

We didn't expect to have such amazing nurses and doctors, but when we found Shriners it's truly life changing, not only for her, but for all of us, and it's just been... It's made all the difference in her recovery and in our life.

Speaker 1:

Shriner's Children's in Ohio has tremendously helped my family. Without them, he wouldn't be here at all. We couldn't have made it without Shriners.

Speaker 2:

I came here 21 years ago and I fell in love with this place because I immediately got a sense of family from the staff. The wraparound care that we provide is not just for the patient, it is also for the family. So we're a family focused center of care.

Speaker 3:

To come into the Shriner systems mean that we have someone here that we love and we're going to get to know not only them but their family. And we'll give them world class care. Our model's really a special relationship, not only with our clinical staff and our patients, but it's that unnamed donor that's standing in the background there that's never seen or many times not identified who really helps us to pull this mission through.

Speaker 4:

We've had 100 year history of raising money to help kids, so it puts us in an awesome position to be able to do what is best for the child. And that's a pretty great thing to put in place.

Speaker 1:

They have supported us in every which way possible. Anything I've ever asked of them, they've been right there. Now, they just continually give us more and more opportunities for him to have new adventures and experiences that he never would've experienced. And they make these kids feel comfortable and anything that they want to do, any type of person they want to be, they're right there behind them helping them out and getting them to be the best people they can be.

Speaker 2:

What's unique about our facility at this time is we are one of the first to become a hospital within a hospital in the Shrine system. And we treat a variety of disease processes going from acute burn and their management, but also with people who have congenital plastic needs for reconstructions. No matter how big or small your burn is, it's important to us to manage and help you get through that trauma of that. No burn is too small for us.

Speaker 3:

With our system, we're really able to take care of the kid for the length of time that our doctors, and our specialists, and our nurses, and our therapists feel that the kid needs to be here.

Speaker 5:

It is our dedicated staff that are only taking care of burns or plastic surgery patients. It's all we do every day, so we have an expertise in it.

Speaker 6:

We didn't expect to have such amazing nurses and doctors. But when we found Shriners and how you guys treated us as a family, it just was life changing. And how we can depend on you guys it's truly life changing, not only for her but for all of us.

Speaker 7:

We are the experts in burn care. We are the experts in the plastic surgeries that we do in cleft lip and palate and the cranial facial, and we want to make sure that they come see us first.

Speaker 8:

But we're actually able to bring in people who have very rare situations and still be able to provide them excellent service.

Speaker 9:

The Shriners, many people think of traditionally as being kind of a burn hospital and then some orthopedic hospitals. But for 30 plus years, the Cincinnati and now the Ohio location has focused heavily on cleft lip and palate, jaw surgeries, kind of the pediatric plastic surgery and cranial facial surgery diagnoses. Raquel is a great example of that, and what she had was much more complex version of a clefting condition. But she was an otherwise healthy kid. She was starving to death because nobody knew how to feed her.

Speaker 8:

In the Shrine you're able to walk in and to look at what needs to be accomplished and you know that the team will do their best and make that happen. To be able to never have to think about anything else except for what's at the best interest of the patient is very valuable.

Speaker 7:

And our doctors are the ones that do the treatments, and our doctors are the ones that say when it's time to go home or not go home or this is what they need going forward. No one else does that. There is no insurance company that does that. That's the basis of what Shriners is all about. We take care of our kids. I wouldn't stack up our results with anywhere in the world. We help people, this is all we do.

Speaker 10:

There was a fire in James' parents apartment. It turned out to be a five alarm fire. James was at that point taken by ambulance to Shriners Hospital, the staff and the crew at Shriners jumped in immediately. The care that was given to James was beyond description. It's a miracle what they do and they jump in when everyone else is afraid to dip their toes in the water, they jump in head first.

Speaker 11:

I would always think if I could just show you the future, that there is a light at this end of this tunnel.

Speaker 12:

Being able to provide that specialized care that they need and deserve is really the heart and soul of what we're about.

Speaker 13:

What we find is meeting families where they are, making sure their basic needs are taken care of, and just making sure that they're comfortable so that they know that we are treating their child just like we would treat our child.

Speaker 8:

It's really every single person that they encounter makes them feel special and it's a scary thing. So for them to at least feel a little bit more at home, a little more safe with us, then I think that really translates to a better outcome. And it's not just the technical surgical outcome, it's the overall outcome for the patients and their families.

Speaker 9:

I just think they'll get the best care that's available and they'll come out of it feeling like they're part of a family.

Speaker 14:

Shriners is a warm, welcoming place. You don't feel like you're going to the hospital.

Speaker 2:

What is important is to get the child the care that child needs.

Speaker 9:

Then you can see what we're left with, which is a happy girl who's I think going to grow up and have a normal life. I think you just see it in the quality of the results and the compassion, and how everybody just works as a team and how the families of feel that. And I think pretty much everybody goes away happy.

Speaker 15:

Shriners is a miracle for me, this doctor. All the people here, it's a big miracle for us.