-
Condition
Werdnig-Hoffmann Disease
Werdnig-Hoffmann disease is a severe form of spinal muscular atrophy. This rare genetic condition causes muscles to weaken, leading to minimal ability to move.
-
Our Treatment Approach
https://www.shrinerschildrens.org/en/Locations/St-Louis/About-Us/Our-Treatment-ApproachLearn about the innovative and compassionate approach to treatment at Shriners Children's St. Louis
-
Our Affiliations and Partners
https://www.shrinerschildrens.org/en/Locations/Twin-Cities/About-Us/Our-Affiliations-and-PartnersLearn about Shriners Children’s Twin Cities affiliations and partnership with Gillette Children's
-
Patient Story
Walking Toward Hope: Tadeo’s Path Forward
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2025/06/Tadeo-Burn-CareTadeo has spent much of his childhood receiving care at Shriners Children’s Texas after a serious fireworks accident left him with life-altering injuries as a toddler.
-
Provider
Alexander L. Van Speybroeck, MD
https://www.shrinerschildrens.org/en/Our-Care-Providers/V/Alexander-L-Van-Speybroeck-MD-50666Alexander L. Van Speybroeck, MD specializes in Pediatrics.
-
Patient Story
Connecting Infant Neck and Hip Care at Shriner's Children's Erie
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2025/07/Brynlee-Torticollis-CareWhat started as a simple concern about Brynlee’s head movement led to a surprising diagnosis and early treatment that is helping her thrive today.
-
Patient Story
Beyond the Diagnosis: How Olivia Dances, Flips and Creates
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2025/11/Olivia-symbrachydactyly-careOlivia was born with hand and chest differences, but with skilled, non-surgical care from Shriners Children’s, she’s learned to adapt confidently. Today, she thrives in everything from art to dance.
-
Patient Story
Chasing Dreams One Dance at a Time – Abbey’s Amazing Journey
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2025/05/Abbey-Cerebral-Palsy-CareWith support from Shriners Children’s Chicago, Abbey went from therapy to dance, cheer and advocacy.
-
Patient Story
Eating, Sleeping, and Breathing Soccer
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2023/03/Kianas-StoryShe had speed, physical strength, and above all the spark in her heart and fire in her eyes.
-
Patient Story
Jennifer, Framing Personal and Professional Success
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2023/04/Framing--personal-and-professional-successAfter several treatments for arthrogryposis, Jennifer always knew that she would achieve her dreams.
Patient Information
Providers & Research
