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Patient Story
Shriners Children's Boston Patient Family Embraces Volunteerism
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2024/07/Sarah-and-BeauBeau's family wanted to do more to support other parents just learning that their child would be born with a cleft lip or palate.
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Patient Story
Shriners Children’s Boston Is the Right Place for Cleft Lip and Palate Care
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2024/10/Flynns-Cleft-Lip-and-Palate-JourneyFlynn is receiving care at Shriners Children's Boston for a cleft lip and palate.
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Patient Story
Courage Comes in Small Packages
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2025/05/Rhyatt-Cleft-Lip-and-Palate-CareSeven-year-old Rhyatt was born with a cleft lip and palate, a condition that has shaped much of his young life.
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Patient Story
Henry's Forever Smile
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2023/11/Henrys-Forever-SmileHenry receives care for his cleft lip and palate at Shriners Children's Boston.
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Patient Story
Penny's Story
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2021/09/Pennys-StoryPenny and her family enjoy world-class care in a comforting environment
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Patient Story
‘Having a Cleft Has Made Me a Better Person’: Talia’s Story
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2025/07/Talia-Craniofacial-CareTalia credits her journey as a cleft patient with helping to shape the person she has become and inspiring her goals for the future.
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Patient Story
From Patient to Philanthropist: Megan's Story
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2022/10/Megans-StoryShriners Children's patient alumnus gives back.
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Condition
Freeman-Sheldon Syndrome
Freeman-Sheldon syndrome, or "whistling face syndrome", is a rare condition that primarily affects the face, hands, and feet. From craniofacial to orthopedic specialists, Shriners Children's offers care for many symptoms of this condition.
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Patient Story
Leufry’s Story
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2022/07/Leufrys-StoryLaser technology provides innovative approaches to burns.
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Patient Story
Family-Centered Care at Shriners Children’s Boston: Meet Maverick
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2022/10/Meet-MaverickThe Shriners Children's Boston craniofacial care team helps families navigate a cleft diagnosis.
Patient Information
Providers & Research
