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Patient Story
Richard's Story
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2022/07/Richard-Navigating-WavesIt’s August 1968 and all of Richard's family heads off in the car to visit family in Montreal.
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Patient Story
Shriners Children’s Gives Liam a New Lease on Life
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2024/04/Liams-New-Lease-on-LifeLiam gains confidence and independence while living with a rare disorder.
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Patient Story
Rare Conditions, Extraordinary Courage: Dominic’s Story
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2025/04/Dominic-Osteogenesis-Imperfecta-CareDominic’s journey at Shriners Children’s Northern California spans over a decade of specialized care, beginning with a rare diagnosis of osteogenesis imperfecta and Brucks syndrome.
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Patient Story
Hadley Won't Let Brittle Bones Stop Her
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2021/04/Hadley-Wont-Let-Brittle-Bones-Stop-HerOsteogenesis imperfecta won't stop Hadley from living her best life
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Condition
Amputations
https://www.shrinerschildrens.org/en/Pediatric-Care/AmputationsAmputation due to trauma or as part of a treatment program can be a trying time for children and families, both physically and emotionally. At Shriners Children’s, our goal is to improve the function, mobility and independence of each child.
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Condition
Genu Varum
https://www.shrinerschildrens.org/en/Pediatric-Care/Genu-Varum"Bowlegs." It's the common name used in place of a medical term — genu varum — for a condition almost all babies are born with. But if your child doesn't outgrown his or her bowlegs, Shriners Children's is there to help.
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Condition
Skeletal Dysplasia Care
https://www.shrinerschildrens.org/en/Pediatric-Care/Skeletal-DysplasiaSkeletal dysplasia includes many rare conditions where bones and cartilage develop differently. Also called dwarfism. Shriners Children's offers orthopedics, neurology, otolaryngology, physical and occupational therapy, and genetic testing.
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Condition
Scheuermann’s Kyphosis Care
https://www.shrinerschildrens.org/en/Pediatric-Care/Scheuermanns-KyphosisOnly about 4% to 8% of kids in the United States have Scheuermann's kyphosis, but the physicians at Shriners Children's are skilled at transforming the lives of those who do.
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Condition
Parry-Romberg Syndrome
Parry-Romberg Syndrome is a rare disease involving shrinking of soft tissue beneath the skin, usually on one side of the face. Shriners Children’s cleft and craniofacial specialists can treat this condition with plastic surgery.
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Condition
Toxic Epidermal Necrolysis
https://www.shrinerschildrens.org/en/Pediatric-Care/Toxic-Epidermal-NecrolysisToxic epidermal necrolysis (TENS) is a severe form of Stevens-Johnson syndrome.
Patient Information
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