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Condition
Crouzon Syndrome
Crouzon syndrome is a rare genetic condition that causes certain skull bones to fuse too early and affects the shape of the child's head and face. Shriners Children's craniofacial specialists offer individualized treatment for this condition.
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Condition
Congenital Foot Deformities
https://www.shrinerschildrens.org/en/Pediatric-Care/Congenital-Foot-DeformitiesShriners Children’s caring, compassionate physicians and care teams diagnose and treat pediatric congenital foot deformities in children, from newborns to teens and young adults, often without surgery.
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Condition
Mandibular Hypoplasia
Mandibular hypoplasia, or micrognathia is when the lower jaw (mandible) forms too small and teeth don't align. May affect a child's eating, breathing and speech. Shriners Children's craniofacial and ENT surgeons provide treatment.
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Condition
Condylar Hyperplasia
Condylar Hyperplasia is a rare craniofacial condition involving the overgrowth of areas (condyle) in the lower jaw bone, resulting in facial asymmetry or a face slanting to the side. Shriners Children's can surgically treat this condition.
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Video
Connor's Story
https://www.shrinerschildrens.org/en/News-and-Media/Videos/2021/01/Connors-StoryMeet National Patient Ambassador Connor and see his story.
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Condition
Thoracic Insufficiency Syndrome
Thoracic insufficiency syndrome is a chest wall deformity that interferes with breathing and lung development. Shriners Children’s offers a number of services to treat the syndrome and any spine disorders causing it.
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Condition
Eyelid Ptosis
Eyelid Ptosis, or droopy eyelid is when the upper eyelid is lower than it should be in one or both eyes. If left untreated, it can cause eyesight problems and permanent deformity. Shriners Children’s can help with plastic surgery.
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Patient Story
Ella’s Story: A Journey of Strength, Love and Empowerment
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2025/07/Ella-Cleft-Lip-and-Palate-CareWhen Ania learned her baby would be born with a cleft lip and palate, fear overwhelmed her until love, resilience and the right support transformed their story into one of strength and hope.
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Patient Story
Shriners Children’s Cleft Lip and Palate Care Inspires Confidence
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2023/02/Peytons-StoryWhen Peyton was born with a cleft lip and cleft palate, his parents were unaware of his condition and shocked to learn about it.
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Patient Story
'Never Give Up': How a 12-Year-Old with Arthrogryposis Found Her Determination
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2025/08/Evelyn-Arthrogryposis-CareEvelyn has overcome a rare condition with the pediatric orthopedic expertise provided by the staff at Shriners Children’s St. Louis.
Patient Information
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