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Condition
Osteogenesis Imperfecta or Brittle Bone Disease
https://www.shrinerschildrens.org/en/Pediatric-Care/Osteogenesis-ImperfectaCommonly referred to as brittle bone disease, osteogenesis imperfecta (OI) is a rare, permanent genetic disorder that prevents the building of strong bones.
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Patient Story
Chloe's Story
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2022/02/Chloe17-year-old Chloe returns to Shriners Children's St. Louis, from her home country of St. Lucia, for her second limb lengthening surgery. Her joyful smile matches her bright future.
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Service
Radiology and Imaging
https://www.shrinerschildrens.org/en/Pediatric-Care/Radiology-and-ImagingShriners Children's radiology and imaging services are a noninvasive way for physicians to see what's going on inside a child's body. Our radiology and imaging professionals work to do this in the safest way possible.
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Patient Story
Stronger Every Step: Cameron’s Story of Perseverance
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2025/09/Cameron-Legg-Calve-Perthes-Disease-CareDiagnosed with Legg-Calvé-Perthes disease as a child, Cameron managed his condition with orthoses, stayed active in the sports he loved and fondly remembers his time at Shriners Children’s Erie.
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Service
Neurology Services
Physicians at Shriners Children's can provide early diagnosis, intervention and treatment for neurological disorders as well as ongoing care for a neurological component of a child's condition.
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Service
Makeup Clinic
At Shriners Children’s our make-up clinic specialists teach your child how to conceal scars and use make-up to soften their appearance. This helps build self-confidence during the healing process.
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Patient Story
Hope for Families Navigating Rare Diseases
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2024/04/Hope-for-Families-Navigating-Rare-DiseasesThrough specialized care and unwavering support, Shriners Children’s Portland provides a beacon of hope for Avery and Madison.
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Patient Story
Comprehensive Care Far From Home
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2025/04/Alejandro-Blounts-Disease-CareFourteen-year-old Alejandro is receiving world-class care for his leg and hip more than 2,660 miles from home.
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Patient Story
Rare Disease Day 2023: Keira and Hannea's Journeys at Shriners Children's
https://www.shrinerschildrens.org/en/News-and-Media/Patient-Stories/2023/02/Rare-Disease-DayRead the stories of Keira and Hannea, who both found their homes away from home at Shriners Children's Philadelphia while receiving care for their rare medical conditions.
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Podcast
Bone Density in Children
https://www.shrinerschildrens.org/en/News-and-Media/Podcasts/2023/05/Bone-Density-in-ChildrenLindsey Nicol, M.D., discusses the importance of bone development in children.
Patient Information
Providers & Research
