Pediatric Colorectal Center

Overview
A patient and doctor in an exam room

The Pediatric Colorectal Center (PCC) at Shriners Hospitals for Children — Northern California is a California Children’s Services (CCS) designated Special Care Center (SCC). As the only CCS Special Care Center for pediatric colorectal care in California, families throughout the state and country travel to Sacramento for comprehensive care. The PCC’s multidisciplinary approach brings specialists together to evaluate, diagnose, and solve colorectal health issues, from bowel management and motility problems to complex conditions such as Hirschsprung disease and anorectal disorders. The PCC offers long-term care for patients with congenital and idiopathic conditions with the goal of helping them to enjoy life with the fewest limitations possible.

Our noted team of pediatric surgeons understand the physical and emotional impacts of colon and rectal diseases. They lead a multidisciplinary team of professionals that manage the entire spectrum of care for kids of all ages – from infants to adolescents. Whether it be complex surgery, medical management or psychosocial support, our team addresses the individual needs of each patient. In all cases, the goal is to put patients on the path to independence by freeing them from the social stigma that may leave them feeling ashamed, depressed and alone

Bowel Management Program

Our Bowel Management Program is a one-week outpatient program for children who are unable to anticipate or control their bowel activity. After children participate in this intensive program, many of them are in normal underwear by the end of the week! By maintaining bowel management after the program ends, these patients can avoid bowel accidents, bed-wetting  permanent colostomy and dependence on diapers. The improvement in self-esteem and quality of life is often remarkable. This program is designed primarily for children age three-years-old and up.

At Shriners Hospital for Children Northern California, we understand that each child is unique and different. Together, we work with patients and families to create the best possible outcome. The goal of our program is to have every child be clean and in underwear. Learn more.

A patient talking to his doctor

Patient Evaluation

Patients are seen in our Sacramento hospital clinic where the Pediatric Surgery team evaluates each patient and develops a treatment plan based on the individual needs of each child. At Shriners Hospitals for Children – Northern California, care is delivered in a hospital designed specifically to serve the medical and emotional needs of children and their families.

Why our team is different

Pediatric specialists at the Shriners Hospitals for Children — Northern California Pediatric Colorectal Center (PCC) care for a high volume of patients with colorectal health issues and rare colorectal conditions. The PCC participates in key consortiums, learning groups and research studies. Through collaboration with experts at other institutions, staff have developed and shared greater understanding of conditions and treatments to improve outcomes for children with colorectal disorders.

The PCC is an active member of the Pediatric Colorectal and Pelvic Learning Consortium (PCPLC), an international group dedicated to furthering research on anorectal malformations, Hirschsprung disease, and other colorectal and pelvic disorders. The PCPLC includes clinical centers and a central data coordinating center, where a detailed registry of patients provides infrastructure for conducting focused studies. The consortium aims to perform multi-center prospective clinical trials, translate findings in practice, disseminate information and findings to providers, and offer training and career development opportunities.

Our team includes a multidisciplinary approach to care. When your child is seen in our Colorectal and Bowel Management Program, they have the input of social workers, child life specialists, nurses, dieticians, and physicians. We run a weekly multidisciplinary meeting discussing all of the upcoming patients to make sure that each child receives the input of each of our team members, even if you don’t meet one-on-one with each of these different specialists.

The key to success is dedication, timing and teamwork between the patient, families and medical team. We tailor each child’s regimen to their specific needs. Each child’s outcome will depend, in part, on the severity of their condition.

Conditions We Treat

What is the Bowel Management Program?

Our program relies on methods shown to achieve results. We carefully adapt these methods to find the right balance for your child. We want you and your child to leave with a clear plan that you can use at home – and that may change your child’s daily life for the better. Learn more.

How will the Bowel Management Program help?

Trouble with bowel control (fecal incontinence) can lead to struggles at home, in school, in friendships, with emotions, behavior and mental health. Many incontinent children can be more active, social, happy and independent if they have a plan for bowel management that works for them. Our program is designed with YOU in mind. Learn more.

Outpatient
  • At the initiation of our program, families meet in a group setting led by the Nurse Case Manager, along with a registered dietician and child life specialist. During this educational visit, the patient and their parent will receive information on the program, the work-up for constipation, dietary changes to improve constipation, and how to help the child cope with their diagnosis.
  • This unique outpatient program is designed for children with constipation
    who cannot anticipate or control their bowel activity. Primarily for children
    age three and older, the week-long program enables most patients to avoid
    accidents, bedwetting, colostomy and dependence on diapers. Families
    are provided with clear plans to continue progress at home and access the
    resources available at the Pediatric Colorectal Center (PCC).
  • Further visits are conducted one-on-one with a medical provider within our team.
Inpatient
  • Patients with severe constipation or bowel control issues who have not
    achieved success from outpatient care often benefit from an inpatient
    program. A combination of medication, enemas, diagnostic testing, support
    and education are tailored to the needs of each patient. Families are given a
    clear plan for home care that includes dietary recommendations and return for
    follow-up appointments with the PCC team.
  • After the hospitalization, the child is discharged with a clear treatment plan in place. Further follow-up appointments are conducted one-on-one with a medical provider from our team.

Meet the Team

Members of our team will work with you and your child on bowel management. Providers in the Bowel Management Treatment Program include:

Shinjiro Hirose, M.D.
Director of Pediatric Surgery

Payam Saadai, M.D.
Director of the Pediatric Colorectal Center

Maheen Hassan, M.D.
Director of GI Motility

Erin Brown, M.D.
Pediatric Surgeon

Arthur de Lorimier, M.D.
Pediatric Gastroenterologist

Jonathan Kohler, M.D.
Pediatric Surgeon

Minna Wieck, M.D.
Pediatric Surgeon

Eric Kurzrock, M.D.
Pediatric Urology

Jennifer Yang, M.D.
Pediatric Surgeon

Jennifer Miranda
Nurse Practitioner

Kat Swartz
Nurse Practitioner

Carolyn Wilson
RN Care Manager

Annabell Toll
Registered Dietician

Kat Davis
Outpatient Child Life Specialist and owner of Yogo

Yogo
Therapy and Support Dog

Sarah Ferrin
Inpatient Child Life Specialist

Courtney Krakie
Licensed Clinical Social Worker

Aime Andrade
Medical Assistant and patient scheduler

These team members have special expertise in treating children’s pelvic conditions and making bowel management plans with families. When you come to Shriners Hospitals for Children – Northern California, you get their combined knowledge and experience. They work with each other and with you to create a plan that meets your child’s needs.

To find out about joining the program, talk with your child’s doctor about a referral, or call (916) 453-2191. Before your child enters the program, the team does a full evaluation to understand your child’s condition and determine whether they might benefit from the program.

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Colorectal Care

Advanced pediatric care for children with colorectal and motility disorders

Colorectal Care

Blog

Pediatric motility testing now available

Shriners Hospitals for Children — Northern California recently welcomed Pediatric GI Motility Disorders Specialist Maheen Ahmed Hassan, M.D., to its medical staff. Dr. Hassan brings exciting new capabilities to the services provided in the hospital’s pediatric colorectal center.

Doctor

Shinjiro Hirose, M.D.

Director of Pediatric Surgery

Shinjiro Hirose, M.D.

hirose_shriners_doctor

Shinjiro Hirose, M.D. is Director of Pediatric Surgery at Shriners Hospitals for Children – Northern California and Chief of the Division of Pediatric and Fetal Surgery in the Department of Surgery at the University of California, Davis Children’s Hospital.

Make an Appointment »

Doctor

Maheen Ahmed Hassan, M.D.

Director of GI Motility 

Dr. Hassan

Maheen Ahmed Hassan, M.D., is Director of GI Motility at Shriners Hospitals for Children – Northern California.

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Hirschsprung Disease

Hirschsprung Disease

Care for Hirschsprung disease requires expertise to diagnose the condition, perform delicate surgery and keep your child healthy for life. Each child’s case is unique. Our pediatric team will partner closely with you to develop the best treatment plan for your child.

Pediatric Surgeons Make Dream Come True

Young boy swimming

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Inflammatory Bowel Disease

Inflammatory Bowel Disease (IBD) is a functional gastrointestinal disorder caused by changes in the gastrointestinal (GI) tract. Children with IBD may have symptoms that include discomfort, cramping, diarrhea, constipation and changes in bowel habits. IBD is a disorder that has both physical and mental causes. Treatment begins with a proper diagnosis, and the Pediatric Surgery team at Shriners Hospitals for Children – Northern California carefully evaluates each patient to develop an individual treatment plan, which may include medications, dietary changes, yoga and exercise therapy.

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Fecal Incontinence

The goal of our Pediatric Colorectal Center (PCC)  is to provide children with anal-rectal disorders advanced care and rehabilitation that frees them from social stigma and allows them to live and play like other children

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Anorectal Malformations

Imperforate Anus

The goal of our Pediatric Colorectal Center is to provide children with anal-rectal disorders advanced care and rehabilitation that frees them from social stigma and allows them to live and play like other children.

Anorectal Malformations

Shriners Hospitals for Children—Northern California treats children each year with a wide range of malformations. We see patients from newborns, who need urgent surgery, to young adults who need long-term follow-up. Our team has extensive experience and can provide all aspects of your child’s care in one place. We also provide second opinions.

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Idiopathic Constipation

Idiopathic Constipation

In our Pediatric Colorectal Center (PCC), children with chronic idiopathic constipation receive comprehensive care from a team of physicians that includes gastrointestinal specialists, urologists and colorectal surgeons, as well as nurses, dietitians and others.

Doctor

Arthur de Lorimier, M.D.

Pediatric Gastroenterologist

Dr. Arthur de Lorimier cares for patients with pediatric gastrointestinal disorders, including feeding difficulties, motility disorders, functional disorders of the bowel, Inflammatory Bowel Diseases, and nutritional disorders.

Make an Appointment »

Education & Training

Education

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Bowel Management Program

Our Bowel Management Program is a one-week outpatient program for children who are unable to anticipate or control their bowel activity. After children participate in this intensive program, many of them are in normal underwear by the end of the week! By maintaining bowel management after the program ends, these patients can avoid bowel accidents, bed-wetting  permanent colostomy and dependence on diapers. The improvement in self-esteem and quality of life is often remarkable. This program is designed primarily for children age three-years-old and up.

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Cloacal Malformations

The goal of Pediatric Colorectal Center (PCC) is to provide children with anal-rectal disorders advanced care and rehabilitation that frees them from social stigma and allows them to live and play like other children.

A cloaca is a malformation in females where the rectum, vagina, and urinary tract are fused together, creating a single common channel. In normal anatomy, these openings are separate. Cloacas affect one of every 20,000 to 25,000 newborn girls. They are most often diagnosed just after the baby is born, but occasionally there are clues on the prenatal ultra sound.

Blog

Bowel Management Programs Helps Patient Gain Independence

A boy sitting on a pillar next to his mom

Bowel management is a subject that most 14 year-old boys can’t have a serious conversation about. But Mathew, a 14 year-old pediatric colorectal patient at Shriners Hospitals for Children – Northern California, has the vocabulary to talk about his colorectal condition with poise and confidence. Mathew has been a Shriners Hospitals for Children – Northern California Pediatric Colorectal Center patient since he was ten years old, and he willingly shares his story with kids and parents who might benefit from it.